Glossary entry (derived from question below)
Spanish term or phrase:
a que los resultados no se hayan publicado
English translation:
that the results must not (yet) have been published
Added to glossary by
Charles Davis
Dec 20, 2018 10:36
5 yrs ago
5 viewers *
Spanish term
United States
Each translation a gem!
Native in: English (Variant: US) 
Works in: Spanish to English, Portuguese to English
a que los resultados no se hayan publicado
Spanish to English
Medical
Medical (general)
Informed consent
These are the conditions for participating in/withdrawing from a proposed study in which schoolchildren in grades 4 to 7 will undergo pin-prick blood tests to assess for the presence of Schistosoma mansoni. I've got a double negative here. Are they saying that the only request that cannot be granted is a request that the study not be published? Or am I missing something? Help!
Context:
Derecho a Retirarse del Estudio. Los sujetos participantes estarán en libertad de retirarse del estudio o pedir no sean utilizados los datos colectados de ellos, en cualquier momento que ellos o sus padres/tutores legales lo indiquen, verbalmente o por escrito, a los investigadores (de los cuales tendrán el celular de contacto), los líderes de equipos de campo o a través de cualquier autoridad escolar o el profesor encargado del aula. La única restricción está vinculada **a que los resultados del estudio no se hayan publicado**.
Context:
Derecho a Retirarse del Estudio. Los sujetos participantes estarán en libertad de retirarse del estudio o pedir no sean utilizados los datos colectados de ellos, en cualquier momento que ellos o sus padres/tutores legales lo indiquen, verbalmente o por escrito, a los investigadores (de los cuales tendrán el celular de contacto), los líderes de equipos de campo o a través de cualquier autoridad escolar o el profesor encargado del aula. La única restricción está vinculada **a que los resultados del estudio no se hayan publicado**.
Proposed translations
(English)
| 4 +5 | that the results must not (yet) have been published |
Charles Davis
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Change log
Dec 25, 2018 08:03: Charles Davis Created KOG entry
Proposed translations
+5
15 mins
Selected
that the results must not (yet) have been published
In other words, you can't withdraw once the results have been published (which makes sense: you can't undo a publication). I think perhaps it is clearly with "must" than with "should", which would be correct in principle, and perhaps clearer still if you add "yet". I also think you could simply omit "vinculada" and say "the only restriction is that the results...". Otherwise you would have to say something like "is linked to the condition that", but it wouldn't really add anything and it would be a bit clumsy, I think.
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Note added at 16 mins (2018-12-20 10:52:47 GMT)
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I meant to write "I think perhaps it is clearER".
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Note added at 16 mins (2018-12-20 10:52:47 GMT)
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I meant to write "I think perhaps it is clearER".
Note from asker:
| Thank you, Charles. That makes perfect sense. |
Peer comment(s):
| agree |
franglish
2 mins
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Thanks, franglish :-)
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| agree |
Lorraine Valarino
8 mins
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Thanks, Lorraine :-)
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| agree |
Anne Schulz
1 hr
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Thanks, Anne :-)
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| agree |
Chema Nieto Castañón
: You can withdraw at any moment and you can also request your collected data not to be used -as long as the results of the study have not been published yet.
8 hrs
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¡Exacto! Muchas gracias por la aclaración :-)
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| agree |
Stephen D. Moore
14 hrs
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Thanks, Stephen :-)
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4 KudoZ points awarded for this answer.
Comment: "Thank you, Charles!"
Discussion
No, el original alude específicamente no a retirarse del estudio sino a "pedir (que) no sean utilizados los datos conectados de ellos", supeditando tal posibilidad a que los resultados no hayan sido ya publicados (en cuyo caso no podrá solicitarse ya la no utilización de datos, por motivos obvios).
[La retirada del estudio tras la publicación de resultados no parece tener sentido. Sí en cambio el ejercicio de derecho a la no utilización de datos personales, previo a la publicación de los resultados del estudio]
Condiciones para participar/retirarse del estudio planteado en el que los alumnos de 4° a 7°...